SUDEPAware

"Studies report that families: 1) Want to be told about the risk of SUDEP by their healthcare providers; and 2) Believe that learning about SUDEP could make a difference in how they approach seizure control". Yet, despite the serious risk of SUDEP, health care providers are hesitant to discuss it.

​

RESOURCES THAT MAY HELP ENHANCE SUDEP DISCLOSURE DISCUSSIONS

​

USA - MATERIALS:

​

@childneurologyfoundation.org

​

[1]  Understanding Your Child’s Risk for SUDEP: Your Child’s Current Risk is Low, But it is Important to Stay Informed” (LOW RISK for SUDEP)

​

[2]  Understanding Your Child’s Risk for SUDEP: The Need to Have as Few Seizures as Possible” (HIGHER RISK for SUDEP)

​

[3] [  ]

​

USA - ELECTRONIC TOOLS:

​

[1]  The Child Neurology Foundation is working with Digital Health Solutions LLC and Greenwich Biociences Inc. to design and implement a high-tech tool, through Child Health Improvement through Computer Automation (CHICA)®. This project aims to automatically generate SUDEP risk screening during routine primary care visits.

​

​

​