Stories shared
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 Lisa MontaneraWe only learned about SUDEP upon the death of our youngest child and only daughter, Lisa. The tragic end of her precious life, the lack of understanding of why it happened, and what we could have done to save her will haunt us forever ... |  Chris SmithIn the 7 years that Chris dealt with his epilepsy and in all the hospitalizations and doctor visits, nobody had ever mentioned SUDEP ... |  Richard BergIn 2010, I lost my fiancé Rick Berg to what we believe was SUDEP. Rick was 47 years old - vibrant, full of life, we were about to be married ... |
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 Jordan FawcettOur precious Jordan, age 15, lived a short but very fulfilling life ... |  Thomas ThorneThomas was my third born child and only son. He was the most beautiful baby you could imagine and he grew up to be a handsome young man. He had three mothers ... |  Evan BaykoJune 6, 2011 was the worst day that a Mother could ever experience. How do you say goodbye, forever, to your son? ... |
 Hadyn KivinenHadyn had an absolute zest for life and an infectious smile ... |  Traci Cleverley PinkMy wife, Traci Cleverley Pink, passed away from SUDEP in November 2011, barely three months ago ... |  Chris Hayduk-CostaHow can one adequately describe one’s son who is no longer living? In my case ... |
 Jesse PayneOn the morning of September 19, 2008, I knew there was something wrong. I could feel it... |  Jayne AndrewsThis is our beautiful and beloved daughter, Jayne Lyndee Andrews, who was ... |  Adrian WebleySunday 29th May 2011 was the day that broke my heart; the day ... |
 Tyler StevensonTwo years ago my 20-year old son, Tyler, passed away from SUDEP and I found myself ... |  Sam HardcastleThirteen years ago, I lost my daughter and her unborn son to SUDEP. This was the moment my life changed forever ... |