Stories shared

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Lisa Montanera

Lisa Montanera

We only learned about SUDEP upon the death of our youngest child and only daughter, Lisa. The tragic end of her precious life, the lack of understanding of why it happened, and what we could have done to save her will haunt us forever ...

Richard Berg

Richard Berg

In 2010, I lost my fiancé Rick Berg to what we believe was SUDEP. Rick was 47 years old - vibrant, full of life, we were about to be married ...

Jordan Fawcett

Jordan Fawcett

Our precious Jordan, age 15, lived a short but very fulfilling life ...

Thomas Thorne

Thomas Thorne

Thomas was my third born child and only son. He was the most beautiful baby you could imagine and he grew up to be a handsome young man. He had three mothers ...

Evan Bayko

Evan Bayko

June 6, 2011 was the worst day that a Mother could ever experience. How do you say goodbye, forever, to your son? ...

Hadyn Kivinen

Hadyn Kivinen

Hadyn had an absolute zest for life and an infectious smile...

Traci Cleverley Pink

Traci Cleverley Pink

My wife, Traci Cleverley Pink, passed away from SUDEP in November 2011, barely three months ago ...

Chris Hayduk-Costa

Chris Hayduk-Costa

How can one adequately describe one’s son who is no longer living? In my case ...

Jesse Payne

Jesse Payne

On the morning of September 19, 2008, I knew there was something wrong. I could feel it...

Jayne Andrews

Jayne Andrews

This is our beautiful and beloved daughter, Jayne Lyndee Andrews, who was ...

Adrian Webley

Adrian Webley

Sunday 29th May 2011 was the day that broke my heart; the day ...

Tyler Stevenson

Tyler Stevenson

Two years ago my 20-year old son, Tyler, passed away from SUDEP and I found myself ...

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